Book cover: Disability Rights Advocacy Online
My book Disability Rights Advocacy Online: Voice, Empowerment and Global Connectivity is now available in paperback edition. Click here to order your copy and use discount code FLR40 at check out for 20% off. If you are interested in using the book for one of your classes, you can also order an inspection e-copy – I’d love to hear from you if you plan to include this work in your courses!
The book examines the rapid and unexpected digitalization of disability rights advocacy in the UK and the U.S., discussing the tension between the ability of digital advocacy to enhance the stakes in democratic citizenship for Internet users with disabilities and persisting Web accessibility issues. Given the urgency of crises faced by people with disabilities and other marginalized groups around the world, this book draws valuable lessons for anyone interested in progressive digital advocacy and inclusive social change. To read the full synopsis, click here.
My latest article is just out in the Australian Journal of Political Science. “Connective Action Mechanisms in a Time of Political Turmoil: Virtual Disability Protest at Donald Trump’s Inauguration” examines the forces that underpin the rapid formation of online counter-publics in the wake of disruptive political events such as Donald Trump’s election. Both the advantages and disadvantages of connective action as a response to this type of political upheaval among traditionally marginalized populations are discussed through a case study of virtual disability protest at Donald Trump’s inauguration (the “Disability March“). This article is part of a forthcoming special issue edited by Ariadne Vromen (University of Sydney) and Andrea Carson (University of Melbourne) for the Australian Political Science Association’s POP Politics Aus Group. Please contact me if you need a link to a free copy of this article. Here is the abstract:
This paper explores the connective action mechanisms that underpin the rapid formation of online counter-publics in the wake of disruptive political events through a case study of crowd-sourced disability protest launched in response to Donald Trump’s election as U.S. President. Coverage of this protest in U.S. news media is reviewed also as a first step towards assessing the ability of this initiative to influence public discourse. Findings suggest that controversial election results can spur mobilisation, but by themselves do not appear to be sufficient for connective action to really flourish and succeed. Personal action frames that typically are central to connective action struggled to emerge in crowd-sourced contributions that focused on Trump and his politics. The reasons behind these outcomes and their implications for the potential effectiveness of crowd-sourced protest are discussed.
I am honored an excited to speak at the 2017 Ruderman Inclusion Summit this weekend (Nov. 19-20) in Boston, MA. The Summit is one of the largest disability inclusion events in North America and brings together more than 1,000 people from a variety of sectors, including but not limited to: policy; advocacy; technology; human services; business; social justice; education; and housing, to share best practices and network. The aim is to motivate and educate attendees with the knowledge to advance inclusion of persons with disabilities in all aspects of life.
I will discuss my latest work on citizens with disabilities and online information in elections in a panel on effective political participation 15 years on from the signing of the Help America Vote Act (2002). I will be joined by commentator and political analyst Norman Ornstein, Michele Bishop of the National Disability Rights Network, and Kathy Hoell of the Statewide Nebraska Independent Living Center. Other speakers at the summit include, among others, Academy Award-winning actress and disability activist Marlee Matlin, U.S. Senator Maggie Hassan, and former President of Malawi Dr. Joyce Banda.
I am grateful to the Ruderman Family Foundation, which works to correct the injustice of exclusion of children and adults with disabilities, for inviting me to speak at this event.
Today (10/11) I am in Birmingham, AL to give a talk on “Using Digital Storytelling to Promote Human Rights: The Experience of Disability Advocates” at the Institute for Human Rights at the University of Alabama, Birmingham. The talk is scheduled for 6-7:30pm CDT in Heritage Hall. Accessible virtual participation with closed captioning will be available for this talk via Blackboard Collaborate using this link: http://tinyurl.com/trevisan-lecture-uab-ihr
In this talk, I will discuss the benefits and drawbacks of using crowd-sourced personal stories to counter negative portrayals of people with disabilities in popular and public discourse, and advocate for disability rights using examples and case studies from both the United Kingdom and the United States.
On Thursday, October 12, I will also be a guest speaker in UAB’s Digital Storytelling course (part of the Media Studies program) and give a lecture on representations of disability and disability rights activism to students in UAB’s School of Medicine.
This visit will conclude with a tour of the Lakeshore Foundation, a leading training, research, and advocacy center that aims to empower people with physical disabilities and chronic health conditions through sports, recreation, and physical activity.
I am extremely grateful to the Director of the Institute for Human Rights, Associate Professor Tina Kempin-Reuter, for this invitation and for organizing such a wonderful program.
Second Australian talk – I will discuss my book “Disability Rights Advocacy Online” during an invited seminar at the University of Newcastle. The event on Monday, July 3rd will start at noon in Room GP2.01 at the Callaghan Campus. Free registration is available here and the seminar will also be streamed live online. Anyone can join remotely by clicking here. The official Twitter hashtag for the event is #DisabilityRightsUON
I look forward to connecting with a wonderful group of scholars that does some great work on multiple aspects of disability and discuss how the book can help us to understand some of the latest developments in disability rights advocacy, including grassroots mobilization in the wake of Donald Trump’s election as U.S. President.
Special thanks go to my colleague Prof. Bronwyn Hemsley for being the driving force behind this event.
I am delighted to join colleagues from across Australia and the U.S. at a workshop on Political Action in the Digital Age organized by the Pop Politics Aus group at the University of Melbourne on June 29-30. My presentation is titled “When in Shock, Turn to the Internet,” and discusses the virtual response from the American disability community to the election of Donald Trump as the 45th U.S. President.
This is the first of three events at which I will speak during a brief visit to Australia over the next few days to connect with leading researchers in the fields of disability and technology, as well as online politics at the Universities of Sydney and Newcastle. I will publish more details about the other events in the next few days.
This week I am in New York to participate in the historic 10th Conference of State Parties to the Convention on the Rights of Persons with Disabilities at the United Nations’ Headquarters. The biggest disability rights conference in the world, COSP brings together all the countries that signed the CRPD, U.N. agencies, and civil society organizations for a series of talks on the advancement of disability rights
around the globe.
The Institute on Disability and Public Policy at American University has organized three side-events during COSP and co-sponsors two more. I am moderating the three IDPP events and sharing some of the latest IDPP research on Accessible Global Governance together with IDPP Executive Director Dr. Derrick Cogburn. To know more about IDPP’s side-events and the program for the week, click here.
I am thrilled to share the publication of a new single-authored article in the journal Public Relations Inquiry. The article, titled “Crowd-Sourced Advocacy: Promoting Disability Rights Through Online Storytelling,” examines the emergent promotional tactic of creating protest counter-narratives by aggregating personal stories collected from supporters of online disability rights networks. The content, potential efficacy, and implications for those involved are reviewed. This article is part of a special issue on promotional cultures and PR that includes research presented at the “Powers of Promotion” 2016 ICA Pre-conference in Tokyo. To access the full article, click here.
This article sheds light on the emergent advocacy technique of building policy counter-narratives by crowd-sourcing, organizing, and disseminating personal life stories online. Focusing on the case of disability rights groups in the United Kingdom, this article uses qualitative in-depth content analysis to examine 107 blog posts containing personal disability stories published in 2012–2013 by two anti-austerity groups. Although each of these groups managed its blogs differently, with one carefully curating stories and the other publishing crowd-sourced narratives without any form of editing, they generated virtually identical counter-narratives. These accounts challenged the dominant news narrative that presented disability welfare claimants as ‘cheats’ and ‘scroungers’. They did so by retaining the overarching structure of the dominant narrative – which functioned as the de facto coordinating mechanism for the crowd-sourced counter-narrative – and replacing its content with three alternative arguments drawn from personal life stories. The implications of this new advocacy technique for disabled people and other marginalized groups are discussed. This includes considerations about the development of a form of story-based advocacy that is both effective and respectful of the people who ‘lend’ their lived experiences for advocacy purposes. This article concludes by highlighting the need for research to investigate whether the new voices that emerge through these processes are ‘being heard’ and can successfully re-frame public discourse about sensitive policy issues.
I am excited to present a paper on “Crowd-sourced Disability Storytelling, Mobilization and the Problem of Being Heard” at this year’s ICA pre-conference on Media Justice: Race, Borders, Disability and Data. This event brings together international scholars, activists and policy practitioners to discuss the role of media in the emergence and/or repression of new voices and the representation of minorities. A detailed program is available here.
Media Justice will take place at the Sherman Heights Community Center, 2258 Island Avenue, San Diego on Thursday May 25th between 9:00am – 5:00pm.
There is no cost to participate in this event but registration is essential. To register, click here.
This Friday (April 21st) I will participate in the University of Maryland Disability Summit for the first time. I look forward to this event that brings together researchers, disability rights advocates and inclusion champions in the Washington, DC metropolitan area and from across the nation. A full program for the day is available here.
Together with colleagues from the AU Institute on Disability and Public Policy (IDPP) I will be presenting on several disability grassroots advocacy topics, including:
- Virtual disability protest under the Trump administration (10:00am, Colony Ballroom)
- Using ICTs to enhance the participation of the disability community in global governance processes (with Derrick Cogburn and Maya Aguilar – 10:00am, Colony Ballroom)
- The CRPD (Convention on the Rights of Persons with Disabilities) iOS App (poster presentation, Colony Ballroom)