New Trends in Citizen Media: Disability Media

Citizen media have flourished and taken on new forms on the internet, and people with disabilities have been among the pioneers in this area as they sought to increase their agency in how disability is represented and aimed to create media that are not only accessible, but also relevant to people with a wide range of disabilities. I explored the evolution of “Disability Media” — media created by people with disabilities with a view to presenting distinctive disability viewpoints on key issues and experiences relevant to the disability community — and their relationship with ever changing technologies in an entry in the recently published Routledge Encyclopedia of Citizen Media.

There is an incredible amount of grassroots innovation in today’s disability media, and this new entry seeks to capture and critically discuss the work of these citizen media activists in conjunction with long term trends in media representations and technological evolution. Here’s a short summary of the entry (contact me for a pre-print copy of the full text):

Disability and disability-related issues are often ignored or misrepresented in mainstream news and popular media. Disability scholars have also argued that initiatives launched by major news organizations to provide better representations of disability, such as the BBC’s Ouch! website, have fallen short of expectations to incorporate the perspective of persons with disabilities effectively (Riley 2005). In addition, traditional forms of media are not fully accessible to Deaf and hard-of-hearing people, nor to people with different disabilities including, to name a few, blind and vision-impaired people, people with intellectual disabilities, and language processing issues. To address these problems, disability communities and Disabled People’s Organizations (DPOs) have built alternative media outlets with a view to providing accessible news coverage, enhancing the visibility of disability issues, and contrasting ableist and stereotypical representations of disability both within news and popular culture (Ellis and Goggin 2015a; Haller, 2010). While historically most of these efforts were oriented toward the provision of information to the disability community and meeting its various accessibility needs, the proliferation of digital media has enabled exponential growth in the disability media sector. Dozens of new disability news websites, blogs, podcasts, sign language video services on YouTube and other media are created every year, and can reach ever expanding audiences (Ellis and Goggin 2015b). Importantly, many of these outlets seek to have an impact beyond the disability community and influence legacy media and non-disabled audiences more broadly.

This entry provides a brief history of disability media initiatives and reviews their relationship with the changing technologies and organizational structures that support them. In particular, grassroots projects that seek to empower aspiring disabled writers, reporters, and videographers and augment the visibility of their content, such as Rooted in Rights and The Disability Visibility Project, are presented. The entry discusses how these initiatives, which follow in the footsteps of community-based projects that equipped people with disabilities with key journalistic skills (Thorsen, Jackson and Luce 2015) and build on the use of unmediated storytelling in disability rights advocacy (Trevisan, 2017), empower new disabled voices to challenge the status quo, enrich news and popular culture with more diverse disability representations, and can become catalysts for the participation of the disability community in key civic moments such as elections and important policy debates.

New Open Access Article in International Journal of Communication

homeHeaderLogoImage_en_USMy latest article “Using the Internet to Mobilize Marginalized Groups: People with Disabilities and Digital Campaign Strategies in the 2016 U.S. Presidential Election” was recently published in the International Journal of Communication. This article discusses how the 2016 campaigns – particularly Hillary Clinton’s – tried to engage with the disability community online and draws key lessons about the inclusion of people with disabilities and other minority groups in digital election strategy planning. The full paper can be accessed freely here.

Here’s the abstract:

It is important to understand the implications of online election campaigning for groups that have been marginalized in politics. To this end, this article discusses a focus group study on digital campaigning in the 2016 U.S. presidential election with voters with a wide range of physical, mental, and communication disabilities. Digital campaigns can deepen or curtail opportunities for people with disabilities to be active citizens. Participants in this study had high expectations to learn about the candidates through new media platforms, particularly Google and YouTube. However, the 2016 campaigns seemed to struggle to understand Americans with disabilities as an emerging online constituency. This mismatch between demand and supply in online election communication is discussed with a view to illuminating the sociotechnical foundations of digital campaigning and its effect on political participation among citizens with disabilities. There are important opportunities for digital mobilization and inclusion here, but their realization is dependent on a cultural shift that values people with disabilities as full citizens.

Now in Paperback – Disability Rights Advocacy Online

Book Cover_2

Book cover: Disability Rights Advocacy Online

My book Disability Rights Advocacy Online: Voice, Empowerment and Global Connectivity is now available in paperback edition. Click here to order your copy and use discount code FLR40 at check out for 20% off. If you are interested in using the book for one of your classes, you can also order an inspection e-copy – I’d love to hear from you if you plan to include this work in your courses!

The book examines the rapid and unexpected digitalization of disability rights advocacy in the UK and the U.S., discussing the tension between the ability of digital advocacy to enhance the stakes in democratic citizenship for Internet users with disabilities and persisting Web accessibility issues. Given the urgency of crises faced by people with disabilities and other marginalized groups around the world, this book draws valuable lessons for anyone interested in progressive digital advocacy and inclusive social change. To read the full synopsis, click here.

Populists Triumph in Italian Election amid Misinformation and a Broken Media System – New article in The Conversation

I published a new article in The Conversation about the online misinformation and broken media system that aided the success of populist and far-right parties in the Italian parliament election held on March 4. Here is a short excerpt from the article – click here for the full text:

“The rise of these populist and far-right parties was supported by dramatic shifts in the information diet of Italian voters. […] The problem is not simply that misinformation is readily available online, but also that a large proportion of Italians find this content credible.” And this is in no small part due to Italy’s broken media system, which has undermined the credibility of journalists. “Long-term efforts to restore trust in journalism among Italian audiences are essential. This will involve strengthening media literacy skills, boosting the independence of the public broadcasting sector, and possibly reorganizing media ownership so that it is not as tightly concentrated. Without this ambitious set of measures, online misinformation and propaganda are unlikely to go out of fashion in Italy anytime soon.”

Invited Seminar at the University of Newcastle, NSW

Second Australian talk – I will discuss my book “Disability Rights Advocacy Online” during an invited seminar at the University of Newcastle. The event on Monday, July 3rd will start at noon in Room GP2.01 at the Callaghan Campus. Free registration is available here and the seminar will also be streamed live online. Anyone can join remotely by clicking here. The official Twitter hashtag for the event is #DisabilityRightsUON

I look forward to connecting with a wonderful group of scholars that does some great work on multiple aspects of disability and discuss how the book can help us to understand some of the latest developments in disability rights advocacy, including grassroots mobilization in the wake of Donald Trump’s election as U.S. President.

Special thanks go to my colleague Prof. Bronwyn Hemsley for being the driving force behind this event.

New Book: Disability Rights Advocacy Online – Out now!

I’m excited to announce that my book “Disability Rights Advocacy Online: Voice, Empowerment and Global Connectivity” was released in October 2016. Both hard back and e-book versions are available from the Routledge website, as well as on Amazon and other online vendors (where it’s cheaper!).

Book Cover_2

Book cover: Disability Rights Advocacy Online

This book charts the recent digitalization of disability rights advocacy in the U.K. and the U.S., and discusses the implications of this transformation for disabled citizens and other traditionally under-represented groups. In just a few short years, disability rights groups have gone from using the Internet much less than other advocacy organizations to pioneering new uses of social media to foster a deep sense of agency and unify a very diverse community. To read a full book synopsis, click here.