New Trends in Citizen Media: Disability Media

Citizen media have flourished and taken on new forms on the internet, and people with disabilities have been among the pioneers in this area as they sought to increase their agency in how disability is represented and aimed to create media that are not only accessible, but also relevant to people with a wide range of disabilities. I explored the evolution of “Disability Media” — media created by people with disabilities with a view to presenting distinctive disability viewpoints on key issues and experiences relevant to the disability community — and their relationship with ever changing technologies in an entry in the recently published Routledge Encyclopedia of Citizen Media.

There is an incredible amount of grassroots innovation in today’s disability media, and this new entry seeks to capture and critically discuss the work of these citizen media activists in conjunction with long term trends in media representations and technological evolution. Here’s a short summary of the entry (contact me for a pre-print copy of the full text):

Disability and disability-related issues are often ignored or misrepresented in mainstream news and popular media. Disability scholars have also argued that initiatives launched by major news organizations to provide better representations of disability, such as the BBC’s Ouch! website, have fallen short of expectations to incorporate the perspective of persons with disabilities effectively (Riley 2005). In addition, traditional forms of media are not fully accessible to Deaf and hard-of-hearing people, nor to people with different disabilities including, to name a few, blind and vision-impaired people, people with intellectual disabilities, and language processing issues. To address these problems, disability communities and Disabled People’s Organizations (DPOs) have built alternative media outlets with a view to providing accessible news coverage, enhancing the visibility of disability issues, and contrasting ableist and stereotypical representations of disability both within news and popular culture (Ellis and Goggin 2015a; Haller, 2010). While historically most of these efforts were oriented toward the provision of information to the disability community and meeting its various accessibility needs, the proliferation of digital media has enabled exponential growth in the disability media sector. Dozens of new disability news websites, blogs, podcasts, sign language video services on YouTube and other media are created every year, and can reach ever expanding audiences (Ellis and Goggin 2015b). Importantly, many of these outlets seek to have an impact beyond the disability community and influence legacy media and non-disabled audiences more broadly.

This entry provides a brief history of disability media initiatives and reviews their relationship with the changing technologies and organizational structures that support them. In particular, grassroots projects that seek to empower aspiring disabled writers, reporters, and videographers and augment the visibility of their content, such as Rooted in Rights and The Disability Visibility Project, are presented. The entry discusses how these initiatives, which follow in the footsteps of community-based projects that equipped people with disabilities with key journalistic skills (Thorsen, Jackson and Luce 2015) and build on the use of unmediated storytelling in disability rights advocacy (Trevisan, 2017), empower new disabled voices to challenge the status quo, enrich news and popular culture with more diverse disability representations, and can become catalysts for the participation of the disability community in key civic moments such as elections and important policy debates.

New Book Chapter: “Mapping the Search Agenda” – Election case studies from Italy, the UK and the U.S.

How can we use Google Trends to map information flows in election campaigns? Andrew Hoskins (University of Glasgow), Sarah Oates (University of Maryland, College Park), Dounia Mahlouly (King’s College, London), and I addressed this question in a recently published book chapter titled: “Mapping the Search Agenda: A Citizen-Centric Approach to Electoral Information Flows.” The chapter is included in the volume (Mis)understanding Political Participation: Digital Practices, New Forms of Participation, and the Renewal of Democracy, which is edited by Jeffrey Wimmer, Cornelia Wallner, Reiner Winter, and Karoline Oelsner, and published by Routledge.

This chapter builds on a previous article and applies a new methodology that uses Google Trends data to map key information demand trends in elections in the U.S., UK, and Italy, comparing Internet search trends to the salience of key figures and issues in the news media in each country.  Findings for the Italian case (which explores the 2013 general election) are particularly relevant in light of the upcoming Italian election on March 4, 2018. Italian voters demonstrated a particular inclination to looking for information about anti-establishment leaders online by going directly to websites and social media accounts run by parties and other movements, instead of the websites of established news organizations. In light of this, the chapter reflects on how low levels of trust in traditional news outlets boost the relevance of the Internet as a source of alternative news and augment opportunities for political groups, particularly anti-establishment ones, to control the agenda and steer public debate.

New Book Chapter – Disability Protest at the 2012 Paralympics

Routledge just released a great volume on media representations of disability in the run up to, during and after the 2012 London Parlyampic Games. This book was edited by Dan Jackson, Caroline Hodges, MIke Molesworth and Richard Scullion at Bournemouth University and is entitled “Reframing Disability? Media, (Dis)empowerment and Voice in the 2012 Paralympics.”

I contributed one chapter to this book, which focuses on media representations of disability rights protesters during the London Games. The full citation is: “Contentious Disability Politics on the World Stage: Protest at the 2012 London Paralympics,” pp. 145-171. For more information about the book on Routledge’s website, click here.