Book cover: Disability Rights Advocacy Online
My book Disability Rights Advocacy Online: Voice, Empowerment and Global Connectivity is now available in paperback edition. Click here to order your copy and use discount code FLR40 at check out for 20% off. If you are interested in using the book for one of your classes, you can also order an inspection e-copy – I’d love to hear from you if you plan to include this work in your courses!
The book examines the rapid and unexpected digitalization of disability rights advocacy in the UK and the U.S., discussing the tension between the ability of digital advocacy to enhance the stakes in democratic citizenship for Internet users with disabilities and persisting Web accessibility issues. Given the urgency of crises faced by people with disabilities and other marginalized groups around the world, this book draws valuable lessons for anyone interested in progressive digital advocacy and inclusive social change. To read the full synopsis, click here.
This week I’m honored to co-chair the Culture, Diversity and Inclusion mini-track at the 52nd Hawaii International Conference on System Sciences (HICSS) together with my AU colleagues Derrick Cogburn and Nanette Levinson. The mini-track includes two exciting sessions at 8:00am and 10:00am on Friday January 11th with a total of five papers focusing on issues of disability, race, and age in digital and social media.
As part of this mini-track, I’m also going to present a paper I co-authored with Derrick Cogburn on “Technology and Grassroots Inclusion in Global Governance: A Survey Study of Disability Rights Advocates and Effective Participation.” The paper discusses the first global survey of disability rights advocates about their use of technology to participate in global governance processes including both U.N. and non-U.N. international meetings, conferences, and events, as well as the use of social media to engage with disability grassroots in their respective countries. To access a free copy of the paper, click here.
My book “Disability Rights Advocacy Online: Voice, Empowerment and Global Connectivity” received a great review in Disability & Society, the premier scholarly journal in disability studies. In the review, Gabor Petri (University of Kent) wrote that “Disability Rights Advocacy Online is a book by Filippo Trevisan that has been badly missing from disability studies. […] traditional social movement studies usually ignore disability – but one could argue that disability studies equally bypasses social movement and media studies. This book is capable of not only filling a gap between these disciplines but also proposes questions and shows directions for further research. […] Trevisan’s excellent book will inspire researchers to build on the best traditions of disability studies and do more work in this multidisciplinary, fertile area for inquiries.”
To read the full review, click here (free access).
To learn more and purchase the book, click here (use code “FLR40” at checkout for 20% off).
On International Day of Persons with Disabilities 2018, the Institute on Disability and Public Policy (IDPP) launched a new white paper report on “Accessibility in Global Governance: The (In)Visibility of Persons with Disabilities.” Co-authored by the IDPP Executive Director Derrick Cogburn and myself, this white paper is the culmination of a two-year research project that included subject matter expert interviews and a global survey of disability rights advocates from over 50 countries, most of whom in developing parts of the world.
This research, which was supported by The Nippon Foundation, is the first study to comprehensively map barriers to accessibility at United Nations meetings, conferences, and events, as well as other important international forums. In addition, the report also offers examples and recommendations based on recent international conferences that pioneered the use of accessible Information and Communication Technologies (ICTs, including both web-conferencing software and telepresence robots) to facilitate effective remote participation for people with disabilities.
To read and download the full report, click here.
As the October 7 Brazilian elections draw closer, I talked to Folha de São Paulo – Brazil’s most-read newspaper – about Google Trends and what it can tell us about key election information trends. Although Google Trends data can’t predict election outcomes, they show a marked rise in interest for populist firebrand and presidential hopeful Jair Bolsonaro. Read the full article here (in Portuguese).
I published a new article in The Conversation about the online misinformation and broken media system that aided the success of populist and far-right parties in the Italian parliament election held on March 4. Here is a short excerpt from the article – click here for the full text:
“The rise of these populist and far-right parties was supported by dramatic shifts in the information diet of Italian voters. […] The problem is not simply that misinformation is readily available online, but also that a large proportion of Italians find this content credible.” And this is in no small part due to Italy’s broken media system, which has undermined the credibility of journalists. “Long-term efforts to restore trust in journalism among Italian audiences are essential. This will involve strengthening media literacy skills, boosting the independence of the public broadcasting sector, and possibly reorganizing media ownership so that it is not as tightly concentrated. Without this ambitious set of measures, online misinformation and propaganda are unlikely to go out of fashion in Italy anytime soon.”
How can we use Google Trends to map information flows in election campaigns? Andrew Hoskins (University of Glasgow), Sarah Oates (University of Maryland, College Park), Dounia Mahlouly (King’s College, London), and I addressed this question in a recently published book chapter titled: “Mapping the Search Agenda: A Citizen-Centric Approach to Electoral Information Flows.” The chapter is included in the volume (Mis)understanding Political Participation: Digital Practices, New Forms of Participation, and the Renewal of Democracy, which is edited by Jeffrey Wimmer, Cornelia Wallner, Reiner Winter, and Karoline Oelsner, and published by Routledge.
This chapter builds on a previous article and applies a new methodology that uses Google Trends data to map key information demand trends in elections in the U.S., UK, and Italy, comparing Internet search trends to the salience of key figures and issues in the news media in each country. Findings for the Italian case (which explores the 2013 general election) are particularly relevant in light of the upcoming Italian election on March 4, 2018. Italian voters demonstrated a particular inclination to looking for information about anti-establishment leaders online by going directly to websites and social media accounts run by parties and other movements, instead of the websites of established news organizations. In light of this, the chapter reflects on how low levels of trust in traditional news outlets boost the relevance of the Internet as a source of alternative news and augment opportunities for political groups, particularly anti-establishment ones, to control the agenda and steer public debate.
My latest article is just out in the Australian Journal of Political Science. “Connective Action Mechanisms in a Time of Political Turmoil: Virtual Disability Protest at Donald Trump’s Inauguration” examines the forces that underpin the rapid formation of online counter-publics in the wake of disruptive political events such as Donald Trump’s election. Both the advantages and disadvantages of connective action as a response to this type of political upheaval among traditionally marginalized populations are discussed through a case study of virtual disability protest at Donald Trump’s inauguration (the “Disability March“). This article is part of a forthcoming special issue edited by Ariadne Vromen (University of Sydney) and Andrea Carson (University of Melbourne) for the Australian Political Science Association’s POP Politics Aus Group. Please contact me if you need a link to a free copy of this article. Here is the abstract:
This paper explores the connective action mechanisms that underpin the rapid formation of online counter-publics in the wake of disruptive political events through a case study of crowd-sourced disability protest launched in response to Donald Trump’s election as U.S. President. Coverage of this protest in U.S. news media is reviewed also as a first step towards assessing the ability of this initiative to influence public discourse. Findings suggest that controversial election results can spur mobilisation, but by themselves do not appear to be sufficient for connective action to really flourish and succeed. Personal action frames that typically are central to connective action struggled to emerge in crowd-sourced contributions that focused on Trump and his politics. The reasons behind these outcomes and their implications for the potential effectiveness of crowd-sourced protest are discussed.
I am honored an excited to speak at the 2017 Ruderman Inclusion Summit this weekend (Nov. 19-20) in Boston, MA. The Summit is one of the largest disability inclusion events in North America and brings together more than 1,000 people from a variety of sectors, including but not limited to: policy; advocacy; technology; human services; business; social justice; education; and housing, to share best practices and network. The aim is to motivate and educate attendees with the knowledge to advance inclusion of persons with disabilities in all aspects of life.
I will discuss my latest work on citizens with disabilities and online information in elections in a panel on effective political participation 15 years on from the signing of the Help America Vote Act (2002). I will be joined by commentator and political analyst Norman Ornstein, Michele Bishop of the National Disability Rights Network, and Kathy Hoell of the Statewide Nebraska Independent Living Center. Other speakers at the summit include, among others, Academy Award-winning actress and disability activist Marlee Matlin, U.S. Senator Maggie Hassan, and former President of Malawi Dr. Joyce Banda.
I am grateful to the Ruderman Family Foundation, which works to correct the injustice of exclusion of children and adults with disabilities, for inviting me to speak at this event.
Today (10/11) I am in Birmingham, AL to give a talk on “Using Digital Storytelling to Promote Human Rights: The Experience of Disability Advocates” at the Institute for Human Rights at the University of Alabama, Birmingham. The talk is scheduled for 6-7:30pm CDT in Heritage Hall. Accessible virtual participation with closed captioning will be available for this talk via Blackboard Collaborate using this link: http://tinyurl.com/trevisan-lecture-uab-ihr
In this talk, I will discuss the benefits and drawbacks of using crowd-sourced personal stories to counter negative portrayals of people with disabilities in popular and public discourse, and advocate for disability rights using examples and case studies from both the United Kingdom and the United States.
On Thursday, October 12, I will also be a guest speaker in UAB’s Digital Storytelling course (part of the Media Studies program) and give a lecture on representations of disability and disability rights activism to students in UAB’s School of Medicine.
This visit will conclude with a tour of the Lakeshore Foundation, a leading training, research, and advocacy center that aims to empower people with physical disabilities and chronic health conditions through sports, recreation, and physical activity.
I am extremely grateful to the Director of the Institute for Human Rights, Associate Professor Tina Kempin-Reuter, for this invitation and for organizing such a wonderful program.